My little boy has a way to go, but is out of danger now.
Thanks to you all I still have my son.
It's been a VERY bad day and I will be blogging lite for a whiles...
Update:
Thank you all for your kind thoughts and wishes.
We brought him home today- still groggy and uncoordinated from large doses of Phenobarbital, but getting better by the hour.
I have fitted a video camera in his room to quietly keep an eye on him for a bit. Its been seven years since the last seizure and if its another seven it will be too soon!
It was a real fright watching him doing Cheyne-Stokes respiration- one of those situations where a little knowledge can be a dangerous thing.
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